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CFMB Walk 4 Presley
Story
Hey everyone
WALK WITH PRESLEY!
Presley lives with Ullrich Congenital Muscular Dystrophy, a journey that began when she was just six weeks old. In April 2024, at the age of two, we finally received her diagnosis.
Surrounded by an incredible support network, Presley is deeply cherished and uplifted by the love and encouragement of those around her. Now and in the years ahead, she continues to receive dedicated care from her neurologist, orthopedic surgeon, ENT specialist, physiotherapist, and occupational therapist—all working together to ensure she can live her best possible life.
While her condition will inevitably progress, leading to full wheelchair dependence, oxygen support, and the need for a full-time caregiver, Presley remains a bright light in our lives. The future is uncertain, with our emotions—grief and joy—forever woven together. But one thing is certain: our precious girl is happy, she is loved, and she radiates love in return.
Thank you so much for your support!
Tara x
Muscular Dystrophy Queensland Ltd
Muscular Dystrophy Queensland supports people and families living in Queensland with muscular dystrophy and other neuromuscular conditions through: client services including information and referral, community and personal networks, advocacy, equipment loans, assistance with costs related to equipment, modifications, mobility and access, no interest loans, respite, both state and national based awareness raising activities, support of Queensland based research and various fundraising programmes.
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